3 weeks out

This Wednesday will be 3 weeks since Boston's heart surgery. He is doing very well and in 2 days he gets to go in the car for the first time (a check up apt at primary's) not to action packed, but at least he will get out of the house.

Home again

Boston is home! He was doing so well they let him go a few days earlier then we expected. They sent him home with a heart monitor and as long as we don't get anymore blue lips he should be good. We still can't go out and about for 3 more weeks or so, but defiantly making heavy progress! 

Easy like Sunday morning

Good morning :) back from morning x ray and in the room playing with buzz lightyear. Last night went pretty well, besides some pickyness with waking up for meds. He slept well and woke up pretty happy. Yesterday evening was awesome. He walked to the wagon, then went for a ride to the playroom. He had a great time playing in the playroom with Some of his cousins Lilli and Devan. He sat and played the piano and painted a pumpkin. He also had a lot of visitors who all brought him nice prizes. His biggest complaint right now is his iv in his foot. He hasn't been complaining much of pain and his heart rhythms have stayed good. Should be home by Tuesday if he keeps doing well. We'll keep you posted!

Happy Bean

Bean is happy today :)Slept good, peed in the potty (yahoo), went for a wheel chair ride with mom to have an x ray and made it down and back with no SVT or freak outs! He ate dinner ( doritos and a cookie) last night, a few bites of breakfast, and working on pizza now. They removed his chest tube and one of his IVs. He hasn't had any bad heart rhythms today and he looks great. Up talking and watching toy story! He's gotten a lot of love and some prizes from dad and grandparents. The nurses and techs have been great, looking forward to more of this happy Bean.

Sure wish Bean & i were @ SoJo Rec today & not here

Boston did great last night, no high heart rate or anything, was doing great this morning they talked about moving him up to a room and out of ICU but about 20 min ago he went back in to SVT again and his heart rate jumped to around 200 (should be around 100) they had to put him on a pacemaker for a bit to get it down, he is pretty good right now without the pacemaker, he just fell back asleep. It is the saddest thing when he does that, he looks like he is in so much pain when it happens. He thinks it is the tape on his tummy and keeps saying "dumb tape huh mom" poor boy. I hope it stays normal now or I am going to need a pacemaker!

Pictures

Early this morning

Last night

Another update

Sorry no up date in a while. He was doing very good this morning after they took his breathing tube out. They took out his catheter and his pic line. He has had a few little panic attacks off and on this afternoon because he was in some pain, but then would go back to sleep. He had a little episode and his heart rate went pretty high but it is under control now